For professionnels

France

Albinisme: http://www.genespoir.org/ Amylose : http://www.amylose.asso.fr Ataxie-telangiectasie: http://asso.orpha.net/APRAT/__PP__0.html Bébé collodion: http://www.anips.net/ Behcet (maladie de): http://www.association-behcet.org//index.html Cutis laxa : http://www.orpha.net/nestasso/cutislax Epidermolyse bulleuse: http://www.langenony.fr/ Hidradénite Suppurée (Maladie de Verneuil) :  http://www.vmmv.fr/, http://www.afrh.fr/ Ichthyoses : http://www.anips.net/ Lyell : http://amalyste.free.fr Lupus érythémateux :http://www.orpha.net/nestasso/LFhttp://lupus.france.chez-alice.fr Marfan : http://www.vivremarfan.org Neurofibromatose (Maladie de Recklinghausen) : http://www.anrfrance.orghttp://www.neurofibromatosis-network.org/ Noonan : http://groups.msn.com/noonanfrance/ Pemphigus: http://www.pemphigus.asso.fr/ Pemphigoïde bulleuse: http://www.pemphigus.asso.fr/…

Canada (français)

• Bullous pemphigoid:  http://www.pemphigus.ca/e/
• Dermatitis: http://www.eczemahelp.ca/index.html
• Dystrophic epidermolysis bullosa: http://http://www.debracanada.org/
• Eczema: http://www.eczemahelp.ca/index.html
• Lupus erythematosus: http://www.lupuscanada.org/
• Lymphedema: http://www.infolympho.ca/en/index.en.htm
• Lymphovenous disorders (Lymphedema): http://www.lymphovenous-canada.ca/
• Melanoma: http://www.melanoma.ca/
• Pemphigus: http://www.pemphigus.ca/e/
• Pityriasis rubra pilaris: http://www.prp-support.org/
• Porphyria: http://www.cpf-inc.ca/
• Psoriasis: http://www.psoriasissociety.org/
• Systemic sclerosis(Scleroderma): http://www.scleroderma.ca/index.php

Invitation à participer

If you know any patient support group* -which is present on the web, but not in our lists -which is in English Please send us an email to [email protected]. We will correct this as soon as possible. Thank you The administrators *We define a patient support group as being a non-for profit association, a charity or…