Category Archives: Groupes d’entraide et Associations

Etats-Unis (anglais)

Acne vulgaris: http://www.isdionline.org/index.htm Actinic keratosis: http://www.skincancer.org/ Albinism: http://www.albinism.org/ Alopecia areata: http://www.baldgirlsdolunch.org/, http://www.naaf.org/site/PageServer?pagename=homepage Arterio-veinous malformation: http://www.novanews.org/ Basal cell carcinoma prevention: http://www.skincancerprevention.org/ Basal cell nevus syndrome: http://www.bccns.org/ Behcet’s syndrome: http://www.behcets.com/site/pp.asp?c=bhJIJSOCJrH&b=260521 Bullous pemphigoid: http://www.pemphigus.org/ Cicatricial alopecia: http://www.carfintl.org/ Collodion baby: http://www.scalyskin.org/index.cfm Darier’s disease: http://www.scalyskin.org/index.cfm, http://depts.washington.edu/ichreg/ichthyosis.registry/ Degos’s disease: http://www.degosdisease.com/ Congenital nevus: http://www.nevusnetwork.org/ Dermatitis: http://www.nationaleczema.org/, http://www.isdionline.org/index.htm Dysplastic nevus: http://www.skincancer.org/ Ectodermal dysplasia:…

Royaume-Uni (anglais)

Allergy: http://www.allergyuk.org/ AIDS: http://www.aidsmap.com/cms1038153.aspx, http://www.hiv-aids-carers.org.uk/ Alopecia http://www.alopecia-awareness.org.uk/, http://www.alopeciaonline.org.uk/index2.asp Behcet’s syndrome: http://www.behcets.org.uk/ Congenital melanocytic nevus: http://www.caringmattersnow.co.uk/ Cutaneous lymphoma (Mycosis fungoides): http://www.clfoundation.org/ Degos’s disease: http://www.degosdisease.com/ Dermatitis: http://www.eczema.org/ Dermatomyositis: http://www.myositis.org.uk/ Ectodermal dysplasia: http://www.ectodermaldysplasia.org/ Eczema: http://www.eczema.org/ Ehlers-Danlos: http://www.ehlers-danlos.org/ Epidermolysis bullosa: http://www.debra.org.uk/, http://www.ebkids.org/index.php Gorlin syndrome: http://www.gorlingroup.org/ Herpes Simplex (cold sores): http://www.herpes.org.uk/aboutus.html Hidradentitis suppurativa: http://www.ba-hs.org.uk/ HIV: http://www.ahpn.org/index.php, http://www.hiv-aids-carers.org.uk/, http://www.naz.org.uk/hivaids/support.html, http://www.positivelywomen.org.uk/ Hyperhidrosis:…

Nouvelle-Zélande (anglais)

• AIDS: http://www.nzaf.org.nz/
• Connective tissue disease: http://www.lupus.org.nz/
• Coeliac disease: http://www.coeliac.co.nz/
• Dermatitis herpetiformis: http://www.coeliac.co.nz/
• Ehlers-Danlos: http://www.edfnz.org.nz/
• Herpes (cold sore): http://www.herpes.org.nz/
• HIV: http://www.nzaf.org.nz/
• Lupus erythematosus: http://www.lupus.org.nz/
• Tuberous sclerosis: http://www.atss.org.au/nzts/

International (anglais)

Epidermolysis bullosa: http://www.debra-international.org/

Leprosy: http://www.who.int/lep/en/

Australie (anglais)

• Alopecia: http://www.alopecia-sydney.com/
• Alopecia areata: http://home.vicnet.net.au/~aasa/
• Coeliac disease: http://www.coeliac.org.au/
• Congenital melanocytic nevus: http://www.nevussupport.com/
• Dermatitis herpetiformis: http://www.coeliac.org.au/
• Psoriasis: http://www.psoriasisaustralia.org.au/
• Raynaud’s phenomenon: http://www.scleroderma.org.au/
• Scleroderma: http://www.scleroderma.org.au/, http://www.sclerodermaaustralia.com.au/
• Sjogren’s syndrome: http://www.scleroderma.org.au/

Tunisie

• Xeroderma pigmentosum: http://www.xp-tunisie.org.tn/

France

Albinisme: http://www.genespoir.org/ Amylose : http://www.amylose.asso.fr Ataxie-telangiectasie: http://asso.orpha.net/APRAT/__PP__0.html Bébé collodion: http://www.anips.net/ Behcet (maladie de): http://www.association-behcet.org//index.html Cutis laxa : http://www.orpha.net/nestasso/cutislax Epidermolyse bulleuse: http://www.langenony.fr/ Hidradénite Suppurée (Maladie de Verneuil) :  http://www.vmmv.fr/, http://www.afrh.fr/ Ichthyoses : http://www.anips.net/ Lyell : http://amalyste.free.fr Lupus érythémateux :http://www.orpha.net/nestasso/LFhttp://lupus.france.chez-alice.fr Marfan : http://www.vivremarfan.org Neurofibromatose (Maladie de Recklinghausen) : http://www.anrfrance.orghttp://www.neurofibromatosis-network.org/ Noonan : http://groups.msn.com/noonanfrance/ Pemphigus: http://www.pemphigus.asso.fr/ Pemphigoïde bulleuse: http://www.pemphigus.asso.fr/…

Canada (français)

• Bullous pemphigoid:  http://www.pemphigus.ca/e/
• Dermatitis: http://www.eczemahelp.ca/index.html
• Dystrophic epidermolysis bullosa: http://http://www.debracanada.org/
• Eczema: http://www.eczemahelp.ca/index.html
• Lupus erythematosus: http://www.lupuscanada.org/
• Lymphedema: http://www.infolympho.ca/en/index.en.htm
• Lymphovenous disorders (Lymphedema): http://www.lymphovenous-canada.ca/
• Melanoma: http://www.melanoma.ca/
• Pemphigus: http://www.pemphigus.ca/e/
• Pityriasis rubra pilaris: http://www.prp-support.org/
• Porphyria: http://www.cpf-inc.ca/
• Psoriasis: http://www.psoriasissociety.org/
• Systemic sclerosis(Scleroderma): http://www.scleroderma.ca/index.php

Invitation à participer

If you know any patient support group* -which is present on the web, but not in our lists -which is in English Please send us an email to [email protected]. We will correct this as soon as possible. Thank you The administrators *We define a patient support group as being a non-for profit association, a charity or…